autism

Earlier this year, Weekend Edition profiled three families and their experiences after a child was diagnosed with autism. At the time, we also asked listeners to share their own stories.

Among the responses were many from people who didn't get diagnosed until they were adults. Some had suspicions about their condition growing up. For others, the diagnosis was a revelation as much as it was a relief.

Here are three that struck a chord. (These first-person stories have been edited for length and clarity.)

John Consentino

The earlier a child with autism can be identified and get treatment the better, child development specialists say. So there's been a push to have pediatricians give all toddlers screening tests for autism during well child visits.

But the influential U.S. Preventive Services Task Force said Tuesday that there's not yet enough evidence to show that screening all children delivers measurable benefits, a decision sure to frustrate or anger many in the autism community.

Was Dr. Asperger A Nazi? The Question Still Haunts Autism

Jan 20, 2016

The publication of a new history of autism called In a Different Key, by John Donvan and Caren Zucker, has reopened an unsettling question about the pioneering Viennese pediatrician Hans Asperger: Was he a Nazi sympathizer, or a man who paid lip service to his bosses' murderous ideology in order to save the lives of as many of his young patients as possible?

University of Washington

 

The findings in new study from the University of Washington show that intensive therapy for very young children with autism spectrum disorder appears to have lasting results. The study’s authors say this makes a strong case for targeted intervention where there is an early diagnosis.

The report will be published next month in the Journal of the American Academy of Child and Adolescent Psychiatry.

Jennifer Wing / KPLU

On a Saturday at the Pacific Science Center, life-size robotic dinosaurs roar. A giant video monitor shows a person sneezing as a spray of mist shoots down from the ceiling. Nearby, naked mole rats scurry blindly through a maze of tunnels.

And since it's all mud and rain outside, the place is packed with curious children and adults trying to keep up with them.

Loud noises, bright lights, crowded spaces: This is exactly the situation Mike Hiner tries to avoid with his 20-year-old son Steven, who is autistic.

Ashley Gross / KPLU

Five years ago, Seattle poet Heather McHugh got some unexpected news: She had been awarded a MacArthur Foundation “Genius Grant” of $500,000.

For the next two years, she tried to figure out what to do with the money. The grant comes with no strings attached, but McHugh says she didn’t want to spend it on herself.

The government's latest estimate shows that 1 in 68 children in the U.S. has an autism spectrum disorder. That's a remarkable jump from just two years ago, when the figure was 1 in 88, and an even bigger jump from 2007, when it was just 1 in 150.

But officials at the Centers for Disease Control and Prevention say the agency's skyrocketing estimates don't necessarily mean that kids are more likely to have autism now than they were 10 years ago.

Gabriel Spitzer / KPLU

Some military families can’t get treatment for their children with developmental disabilities, even if it’s prescribed by a doctor. Washington’s senior senator hopes to force a change, even though her efforts have fallen short once before.

The controversy revolves around a therapy called Applied Behavior Analysis, which is widely used to treat children with autism by reinforcing desired behaviors. Tricare, the military insurance provider, does cover it for children diagnosed on the autism spectrum. But the therapy is being prescribed more and more to children with other disabilities, and those populations are not covered.

Bebeto Matthews / Associated Press

A government survey of parents says 1 in 50 U.S. schoolchildren has autism, surpassing another federal estimate for the disorder.

Health officials say the new number doesn't mean autism is occurring more often. But it does suggest that doctors are diagnosing autism more frequently, especially in children with milder problems.

The earlier government estimate of 1 in 88 comes from a study that many consider more rigorous. It looks at medical and school records instead of relying on parents.

danmachold / flickr

Scientists have been pretty sure autism must begin very early in development, possibly even at the moment a sperm meets an egg. New research, conducted partially in Seattle, supports two interesting theories: